Denis Maltez Didn't Have to Die
Published May 22, 2009 @ 12:30AM PT

12-year-old Denis Maltez died almost two year ago, on May 23, 20072009. He was restrained by staff while on a trip to a flea market to get a haircut. Denis lived in a group home, Rainbow Ranches, which has since been shut down by the state of Florida. Denis had lived in a group home since 2003, "after he tried to choke his younger sister." Yesterday's Palm Beach Post reports that, on that May day two years ago, Denis had become
.... aggressive, kicking and biting group home staff. An autopsy report said he became unresponsive shortly after staff restrained him while he lay on his stomach on a bench seat in the van.
The Palm Beach Post also reports that Denis' mother, Martha Quesada, has now filed a wrongful death and medical malpractice lawsuit Monday in Miami-Dade circuit court. It's claimed that Denis' psychiatrist, Dr. Steven L. Kaplan, and the now-closed Rainbow Ranch group home overmedicated Denis and did not properly monitor his medical condition. Denis was taking a number of medications:
Seroquel and Zyprexa, both anti-psychotic medications; Depakote, an anti-seizure drug sometimes used to stabilize moods; and Clonazepam, a tranquilizer.
The Miami-Dade Medical Examiner's office found that Denis had died of a rare condition, serotonin syndrome:
The rare condition, which can be life-threatening, occurs when a combination of drugs - particularly mental-health drugs - causes the brain to produce an excess of serotonin, a chemical produced by nerve cells that regulates mood. The condition can cause rigidity and tremors, as well as confusion and high blood pressure, said Dr. Carlos Singer, a professor of neurology at the University of Miami's medical school.
This story really struck home with me. Charlie is the same age as Denis when he died. Charlie's on some of the same medication as Denis (not so many, certainly) and has had some of the aggressive sorts of behaviors that Denis had. Unlike Denis, Charlie lives with Jim and me at home. Still, there are similarities between Denis and my son. Charlie, when anxious, can become very physical, and has to be kept safe.
Charlie's become a tall, strong, very active boy who thrives on physical activity---all that pent-up energy, frustrations, anxieties---with significant communication challenges. He still spends the majority of his time with Jim and me rather than with his peers. Many of the activities that his same-age peers spend their time in, such as sports teams and anything athletic, are not available for Charlie, who's not yet been able to participate in the Special Olympics. I know that other kids his age are going through adolescence and growth spurts. Charlie, unlike his peers, isn't able to communicate to the kids his age about how it feels for his body to be changing, about how he doesn't feel the same about his two parents, as he seeks to be more independent.
Think of the aggressive feelings and urges that kids work out on the playing field (for better or for worse): Charlie's not able to do this. Charlie can do some of this playing sports organized for special ed kids, but, on the whole, these tend to be less intense and to require Charlie to pay attention carefully to follow the directions. Sports aren't so much a time for him to "let it all out," as another learning situation.
Charlie's been having his share of "outbursts" both vocal and physical. There tend to be more of the latter, due to his limited language and Jim and I are looking to spending large amounts of the summer getting Charlie the physical workout that he needs everyday, be it through bike-riding, swimming, walking, running, shootings hoops. It's not an exact correlation, but getting him involved in steady, aerobic physical activity a couple times of day helps to lessen the physical outbursts, and to keep things more peaceful easy-feeling for everyone.
The Palm Beach Post story notes that Rainbow Ranches did not adequately oversee his medical care---a significant oversight, due to the types and number of medications that Denis was taking. Living in a group home, and one that has been shut down by the state of Florida, were other needs---for physical activity, for a start--of Denis' attended to?
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There was no necessity for this child to have died. Shameful ignorance, cruelty and lack of education, compassion and knowledge from those who should have been taking care of him - and the authorities - are responsible.
Posted by donnette davis on 05/22/2009 @ 04:12AM PT
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This could so easily be my son- behaviours, reasons why he's in a group home etc. I'm curious as to why the mother didn't have to sign off on the medication and doctor's visits- I certainly have to give both written and verbal consent every time my son's group home takes him to a new doctor (let alone start him on any new medication) as well as get reports about any trips to the ER etc.
I have no idea what the level of family involvement was like in this case, but in addition to the horrendous (but unfortunately too common) behaviour of the group home, it's also a good reminder that if you have a child in care, if anything you need to be more vigilant about what type of care your child is receiving.
Posted by Jen Niebler on 05/22/2009 @ 05:16AM PT
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Talking about The Ranch is so hard for me.
Each state has different laws which means
different situations parents are suddently thrusted into. I had no idea. Our close encounter in California with Section 14 would have taken away all our legal rights as parents. We were lucky to figure a way out. M mom hired an attorney(expert in this area) but the two court appearances are just a formality. The key is to be informed and act before your child is taken away.
See Hearing About Restraints and Seclusion
(Response 8) (First picture of Love is the Message)
I talked to Tony Attwood at an autism conference after the school district wanted to change my son's placement. Tony said that it is important for autistic children to imitate healthy behavior and not behavior of students at the ranch. I used Tony's words to defend myself. They couldn't find another school so we were allowed to "stay put" in his current placement.
However a friend's son, M, and a foster child, C, (his foster mom and I are friends), were not so fortunate. These children were suddenly taken away from their school to the ranch without notification to the parents. My friend waited to pickup her child from school but he was a no show. She had to ask the school what happened to her son.
The government owns your children in Section 14. Parents have no legal rights. You as a parent are not involved in the IEP process, medication, doctor, education, behavior management etc..
On the first night at the Ranch(they have 2 locations) M ran away at night in a big city downtown area. The mom was worried sick about it. Only the Ranch decides when the child is ready for a less restrictive environment.
The only thing that helped was the IEP. M mom was reunited with her son years later. They do have very restrictive visiting hours. Sometimes M mom got to talk to the teachers. M mom felt that her son got some good teachers who helped and understood him. When he left M was a better person.
Because M mom and I had written a positive behavior intervention plan, social skills plus appropriate academic goals and supports such as computer instruction, M did get an education. An IEP is a legal document The Ranch has to follow. The Ranch focuses primarily on the behavior part of education.
Years later M mom called and said that the IEP was the only thing that helped her child. So all I am saying if you are in this situation there are things you can do.
1. Make sure your IEP meets all your child's needs. 2. Research anything you don't understand that the school is saying.
3. Contact an expert like Tony Attwood to find the words to defend yourself.
4. Remember you might not have much time to take action.
Posted by L I on 05/22/2009 @ 07:02AM PT
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I see a lot of my son in what was said about Denis; the behaviors, the meds. He is not on so many meds and he is with us, so everything is carefully monitored. While we often think about how it might have been nice for Charlie to have a sibling, we also have realized that having another child might have meant that we would not have been able to focus so much--solely---on Charlie.
Posted by Kristina Chew on 05/22/2009 @ 10:32AM PT
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@Kristina. "we also have realized that having another child might have meant that we would not have been able to focus so much--solely---on Charlie".
Good point. The same is true in my situation.
Posted by L I on 05/22/2009 @ 11:34AM PT
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Just a quick typo alert-- that should be 2007 in the first paragraph, not 2009.
Posted by Cody Boisclair on 05/22/2009 @ 07:28PM PT
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thank you!
Posted by Kristina Chew on 05/22/2009 @ 07:33PM PT
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