New Study on Vaccine Safety
Published January 26, 2009 @ 05:50AM PT

Further evidence that vaccines containing the mercury-based preservative thimerosal are safe from a study by Italian researchers published today in Pediatrics. From the Associated Press:
In the early 1990s, thousands of healthy Italian babies in a study of whooping cough vaccines got two different amounts of the preservative thimerosal (pronounced thih-MEHR'-uh-sawl) from all their routine shots.
Ten years later, 1,403 of those children took a battery of brain function tests. Researchers found small differences in only two of 24 measurements and those "might be attributable to chance," they wrote in the February issue of the journal Pediatrics, which was released Monday.
Only one case of autism was found, and that was in the group that got the lower level of thimerosal.
Now how can they believe that about vaccines..........
Image from Yale School of Public Health.
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Comments (91)
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Thank you so for posting this. There have been so many unnecessary deaths from those who believe vaccinations cause Autism. Remember it has been over a decade since there was timerosal in US Vaccines....and autism is still occurring.WE absolutely need to find the cause. I believe it is environmental...and GWB has left us a much dirtier environment.
Posted by Lee Dorsey on 01/26/2009 @ 08:07AM PT
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While there have been many studies rebuking the autism-vaccine link in the past few years, there have also been many studies suggesting it has a strong genetic component. One thing to know is some genes can be turned on and off depending on environmental exposures- so there may be some sort of trigger (like an increase of X hormone exposure in utero) however that doesn't negate the genetic components.
Posted by Erin Monk on 01/26/2009 @ 10:50AM PT
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Perhaps one thing that will follow from more studies like this is a more complicated, multivalenced understanding and discussion of autism causation, without excessive fixation on certain vaccines or substance in vaccines or on vaccines, period.
Posted by Kristina Chew on 01/26/2009 @ 12:05PM PT
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If there hasn't been an identified "cause" of autism, how can everyone be so quick to rule out vaccines?Autsim cannot be fully "genetic". We would see all identical twins with both children having autism. We don't see this - there are many cases where only one sibling has it.We have gone from giving 3 vaccines in the 1970s (polio, DPT and MMR) to many more than that today - honestly, I would need to pull up the everchanging chart to be sure I had the count correct - and even then, it would vary from one state to the next. It's hard to believe injecting more and more chemicals into our children's young bodies cannot bring with it risks. After all, you can visit the Merck websites and they tell you on their inserts and in their written literature that vaccines come with risks and side effects. I hate the thought that I held my screaming children down - only to be harmed by the very thing that I thought would protect them. But, there are just too many "coincidences" today, to exonerate vaccines. We were once told that smoking was safe too...
Posted by Jody Mack on 01/26/2009 @ 01:17PM PT
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But if Andrew Wakefield had not held his infamous 1998 press conference about his Lancet study claiming that there was an MMR-autism "link," would we even be talking about this? Especially keeping in mind that most of the authors of the study have since retracted their support for it?
Posted by Kristina Chew on 01/26/2009 @ 01:31PM PT
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Speaking of Andrew Wakefield in the UK report's on MMR. Have you really read up on the real facts of Mr. Deer who wrote and published articles that Wakefield's study/research was false? Fact's now are Mr. Deer. along with other in the UK Health Dept..and a Judge.. who's son or nephew headed the vaccine department in the UK government. Mr. Deer was paid to cause Mr. Wakefield to be blackballed from medicine..it's called medical politics. The truth was not to be allowed as it would collaspe the vaccine program. Other studies from various other government health agencies were false...along with the UK government corrupt. Greed..the fear of the public knowing about the real facts needed to be kept under sealed documents. These are the sealed documents that were/are needed in the U. S. Federal Autism Court that lawyers for injured children tried UK to send and they refused. Hmmmm
Posted by marilyn abdilla on 08/25/2009 @ 11:18PM PT
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Jody, your assertion regarding something that is "fully" genetic and identical twins is not accurate. Is is entirely possible for both identical twins to carry the alleles for heritable disorders yet for one twin to be unaffected, later affected, or less affected than the other. This is called "expressivity" in individuals. In saying that, I'm not arguing that autism is "fully genetic," whatever that means; no gene is an island, and all genes are under environmental influences.
You may have hated "holding (your) screaming children down" to give them something that holds miniscule risk--really, documented, miniscule--but you'd've hated it a lot more watching them die from a HiB-related meningitis infection, among the multitude of possibilities that existed before we moved beyond that basic "three" vaccines you describe from the '70s (it wasn't just three)--the good old days when so many more people died from or were permanently disabled by the diseases against which we now vaccinate.
Kristina--exactly. How much harm has that one "publication" done?
Posted by Emily Willingham on 01/26/2009 @ 02:45PM PT
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lots of "evidence of harm" from that "publication."
Posted by Kristina Chew on 01/26/2009 @ 07:00PM PT
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Hi Emily...You mention vaccines in the 70's and I must say from my experience of the DTP vaccine ( October 1975) the whooping cough (P) vaccine was a nightmare to my husband and I. Our 2 month daughter went for the first baby check up..she received the first series of vaccines and within 6 hours she was a very sick baby. Diagnosed as whooping cough..we were told she may have some brain damage or may not survive being so young. Three months later we had her back to a normal baby.. so anyone since that time ask's me what I think of vaccines I certainly speak my thoughts. Also read the history of that vaccine..half cell..whole cell..either way it sucked. So why would vaccines be any different today? They screwed up than and denied it for years before a 'fix it job was done' to correct this vaccine that harmed, injured and killed babies. This was world wide..not just in this country. No thanks..I don't believe the truth has yet to be said of the issue's of today's autism. Verbal talk of experts just flies over my head with the wind.
Posted by marilyn abdilla on 08/25/2009 @ 10:49PM PT
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The environment is full of poisons, bad air, tainted food, impure drugs outsourced from India, etc.. Just focusing on vaccines as a likely culprit doesn't make sense. Is it because of deep pockets?
Posted by B B on 01/26/2009 @ 05:04PM PT
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I think the focus on vaccines started with Wakefield's study and has yet to let up.
Posted by Kristina Chew on 01/26/2009 @ 06:58PM PT
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Is the claim that a sample size of 1403 showed only 1 case of autism? Wouldn't you expect more? At a rate of 1:150, you'd expect around 9. And, if the expected rate of autism is indeed in this 1:1400 range, isn't the sample size too low to reach any conclusion at all? Wouldn't you want a sample size such that both the control and non-control group would be expected to contain such a case?
Posted by Jim O'Grady on 01/26/2009 @ 10:14PM PT
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It would be of interest to learn more about the criteria used in the study to diagnose autism in one of the children. The abstract specifically mentions neuropsychological testing:
http://pediatrics.aappublications.org/cgi/content/abstract/123/2/475
Posted by Kristina Chew on 01/27/2009 @ 06:00AM PT
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Jim, that rate of 1 in 150 is, I believe, *prevalence*; i.e., the rate of autism in the existing population at a snapshot in time, NOT the rate of newly diagnosed cases in a population.
Posted by Emily Willingham on 01/27/2009 @ 10:21AM PT
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According to the US Department of Education, 1 in 67 children has an IEP for autism. So, the "1 in 150" (from the CDC) is likely to be too low. How do we go from 1-2 per 10,000 children having autism in the 1980s to current numbers? It is not "better diagnosis". There is nobody in my family history anywhere who had autism, until the 1980s!
In terms of 1970s vaccines, I only received three (polio, MMR, DPT). My mother assured me that every vaccine the doctor suggested, I received. Now, as an adult, I've had several more. When I had 5 within short succession a few years ago, I felt like I was "slurring" my words for a couple of years. Perhaps it was just a "coincidence", but it seemed strange that both of my children had speech delays and are on the spectrum. I guess I too was a bit skeptical - until, I personally had a "vaccine reaction".
I know that Wakefield is often mentioned; however, he is not the only doctor discussing vaccine risks. He may be one of the more publicized, in recent years. But, he is by no means the first. Vaccines come with risks. They ended the practice of smallpox vaccination in 1972, shortly before I was born, because there was a greater risk of harm from the shot than of contracting the disease.
Posted by Jody Mack on 01/27/2009 @ 01:27PM PT
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Yes, vaccines were under suspicion (certainly in the US) from the time they were first used, as Paul Offit writes in _Autism's False Prophets_.
Educational criteria for identifying and coding children as on the autism spectrum differ from the kinds of diagnostic criteria used for a diagnosis of autism by a neurologist etc., and the criteria themselves have been greatly changed since autism was first identified and studied. A study by Paul Shattuck found that, as the use of autism as a diagnosis in schools increased, the use of diagnoses such as mental retardation and learning disabilities decreased.
http://pediatrics.aappublications.org/cgi/content/abstract/117/4/1028
These are just two of the factors that have led to what feels like an "epidemic" of autism.
Posted by Kristina Chew on 01/27/2009 @ 01:37PM PT
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Andrew Wakefield published his "study" because he was in the process of developing his own vaccine for measles that he was going to present to the public as a "safer" vaccine after his "study" shot down the MMR vaccine being used in 98. He published for notoriety and money. You cannot claim that Andrew Wakefield is "a doctor discussing vaccine risks" because his intention was (and are still, in my opinion) far more malicious.
Posted by Jennifer Weisenberger on 01/28/2009 @ 09:22AM PT
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Jennifer, I sure would like to know where you got your info on Dr. Wakefield. I have been an advocate for children injured by vaccines for many years..and my Grandson's doctor, Dr. Jeff Bradstreet in Melbourne, FL at the Autism Research knows Dr. Wakwfield very well. Both doctor's have faced malicious talk from the 'experts'. Research done by pharma and gov't researchers is considered 'good research'. Any research done outside of the click is considered ' junk science'. Is something wrong with this picture? I know why..but do you know? If. Dr. Wakefield knew 'something' about the MMR causing the measle virus not to excrete from some children, causing bowel and intestinal problem's and autism symptoms..does he not have the right to correct this and research a better vaccine? (If he did as you say). Reason I advocate on this MMR issue..my Grandson did not excrete the measle virus and mercury. Many test's done have proven this fact. Measle virus was very high with some less mercury (MMR does not have any mercury) Diagnosed as severe autism did not set well with our family..using an equity loan we went for the seed that caused this horrible autism. We found it..but the expert's want to say it was junk science. Who is right?... I want to see the actual research the 'experts' have to prove their point..and other 'experts' we know will also see them. Until than..
Posted by marilyn abdilla on 08/26/2009 @ 12:56AM PT
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There were other sources of mercury which hit us in the 80's. Consider that our world is full of dangerous pollutants.
From Nature:
Mercury emissions from Mount St Helens during September 1980Johan C. Varekamp* & Peter R. Buseck*†Departments of *Geology and †Chemistry, Arizona State University, Tempe, Arizona 85287, USA
Mercury emissions from active volcanoes are of interest for monitoring and forecasting volcanic activity, and for estimating the volcanogenic contribution of Hg to the atmosphere. We collected Hg from air samples during the first two weeks of September 1980, while Mt St Helens was in a non-eruptive phase. Mercury concentrations in the plume varied between 750 and 1,800 ng m-3. With these analyses we calculated that the daily Hg output from the Mt St Helens system ranged from 200 to 1,700 kg. Rough estimates of yearly Hg release from volcanic sources worldwide suggest that volcanoes may be important contributors of Hg to the atmosphere.
Posted by B B on 01/27/2009 @ 02:15PM PT
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And apparently high-fructose corn syrup.
Posted by Emily Willingham on 01/27/2009 @ 03:31PM PT
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Um, Jody...that's because they eradicated smallpox, and you hit exactly on what the real analysis ought to be in considerations of any medical intervention--the cost-benefit analysis. The costs of vaccines in terms of medical risk are miniscule compared to the weight of their benefits. With the smallpox vaccine, with the WHO near complete eradication by '72, just about any risk with the vaccine--and that was a pretty risky vaccine--outweighed the benefits of protection against a disease that essentially no longer existed.
Polio, tetanus, pertussis, diphteria, HiB meningitis, measles, mumps, and rubella--all potentially deadly and frequently permanently debilitating--still exist.
I had the smallpox vaccine. I had many more vaccines than the three you describe in the early 1970s. Whatever. I'm not sure how that's relevant?
Your stats on 1 in 67 children with an IEP for autism can't be compared either way to the prevalence statistic for the population as a whole. It's not an appropriate comparison, and that's not even accounting for the kitchen-sink approach to using "autism" for this purpose, regardless of the real diagnosis, just so services will be available. It's a bureaucratic trick to cut through red tape.
And there have been numerous studies addressing potential explanations for the alleged rise in autism prevalence. If anything, their conclusions point away from vaccination as part of the etiology or cause. One recent study out of California was pretty clear on that. It is, in fact, in part attributable to diagnostic changes (not "better" diagnosis), and some studies suggest that it is in large part attributable to that.
Even if autism were demonstrated to be 100% heritable, it's still entirely possible for your family not to have had a hint of it before. Many disorders arise anew in family lines; in fact, it's one way we measure the rate of genetic mutation--by determining the rate at which dominantly inherited disorders like Huntington's or achondroplasic dwarfism arise de novo in a lineage. And some disorders--like Huntington's, Fragile X, tuberous sclerosis--are fully heritable yet require a sort of threshold of mutation to be met before they manifest. They lurk in lineages as "premutations" long before they achieve the threshold to show up as a disorder.
Posted by Emily Willingham on 01/27/2009 @ 03:41PM PT
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So, are some of you implicating mercury, as having a role in autism? Is autism caused by the environment? Or genetics?
Personally, I don't think "mercury" (Thimerosal) is the only issue associated with vaccines. The ingredients used in various shots are quite disturbing - aluminum, fetal remains, live viruses, animal tissue (and viruses that come with it's use) and so forth. To limit the concern to mercury, doesn't make sense. People who receive the live virus vaccines and then spend time around immunocompromised people, actually risk giving them - measles, rubbela, mumps, chickenpox, etc. Individuals who are not eating a "well-balanced" diet risk being immunocompromised and also catching these viruses from those vaccinated. The standard American diet is not "well-balanced".
How do you account for rising rates of asthma, allergies, diabetes, autoimmune disorders, ADHD, learning disabilities, and on and on? Better diagnosis? Genetic? Environmental? What about all of the websites that address specific health issues -cancers, neurological issues, etc.? Old-age disorders (Alzheimers and Parkinson's) are on the rise too. Coincidence? Better diagnosis? Environmental? Genetic mutations?
How anyone can claim that the rise in autism is due to "better" or "different" diagnosis - is stunning. Again, where were all of these kids 20-30 years ago. Where are all of the adults with autism? Now, I'm not describing those with asperger's or who are high-functioning enough to work and support themselves. I'm talking about adults with autism who are non-verbal (or close to it), perseverate repeatedly and who are unable to interact with the world (in a way that allows them to care for themselves). Where are they? I have no relatives with any form of autism - severe or Aspergers - over the age of 20-something. Not one! Strange to say it's due to genetic mutations. What exactly is causing these mutations? Why can't vaccines play a role? I can play devil's advocate and say "maybe vaccines aren't the ONLY cause" - the water supply, food supply, air, etc. leave a lot to be desired and I don't disagree that they are part of the larger problem. But, why if it's JUST those things, why are most kids developing normally once first outisde the womb? Most parents state that their kids "regress" around age 1-2. If it's JUST the environment, why aren't more kids being born autistic? What is causing the regressions?
I get that it is not "popular" to discuss vaccines on this website, but I'm not sure why. This website should allow for the sharing of all opinions and information.
Posted by Jody Mack on 01/28/2009 @ 08:34AM PT
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We're definitely interested in discussing the science of autism and the latest research. The numerous studies done on autism and vaccines have not found a link, and it will be interesting to see what future studies produce.
Unlike asthma, allergies, diabetes, autoimmune disorders, autism was originally considered a psychiatric, rather than a neurological/neurodevelopmental condition. With more and more refining of how autism is to be defined, and especially with the notion of the "autism spectrum," rates have increased. While my son is today considered "classically autistic," in the past, his diagnosis would more likely have been mental retardation and emotional/behavioral disorder.
The environment is certainly a topic of concern to many now---for instance, all the emphasis on global warming and how we can "green" our lifestyles----and it is no surprise that these issues have come into the discussion about autism.
Posted by Kristina Chew on 01/28/2009 @ 08:47AM PT
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Jody, I'm not down on vaccines as much as upset at the tendency of too many parents to lose important objectivity when it comes to treatments. I have two autistic kids. Much as I love them and their individuality, I'd be happy if my daughter were "cured" because she is so disabled and vulnerable. I fear for her future but as she was growing up, so many parents jumped on every unproven cure bandwagon that showed up. Then, there's be all this excitment and bonding as they celebrated the changes they saw in their kids. But there weren't real changes. One kid's hair got thicker from some allergy treatment. Then the excitment would die down and reality almost set in until the next trendy cure idea popped into town.
And parents can say that they're looking at all options and advocating for their kids but they were ignoring their kids' real needs during each cure euphoria. I begged one of the doctors who specialize in treatments to please tell parents to imagine that their kid may stay disabled and not abondon preparing, just remind them. He said that's like going into a coat store and the salesman sells you a hat.
That's why I get upset about the cure talk. It's very shrill and I imagine parents like the ones I described are being shrill in a desperate attempt to live in denial at the expense of their kids.
Posted by B B on 01/28/2009 @ 09:32AM PT
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Probably not. But that doesn't mean MMR shot taken all together doesn't cause gut issues. I wish that would be made clearer.
Posted by Moi Bloggg on 01/28/2009 @ 09:27AM PT
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The above comment was in Reply to this:
@Kristina: But if Andrew Wakefield had not held his infamous 1998 press conference about his Lancet study claiming that there was an MMR-autism "link," would we even be talking about this? Especially keeping in mind that most of the authors of the study have since retracted their support for it?
I don't know why Change.org's format doesn't let me post the reply directly to the comment. Grrr.
Posted by Moi Bloggg on 01/28/2009 @ 09:29AM PT
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We just got threaded comments introduced, thank goodness!
Posted by Kristina Chew on 01/28/2009 @ 12:21PM PT
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Jody, your questions are all over the map. There are strong hypotheses for why allergies are on the rise, for example, but they are unrelated to the hypotheses for diagnostic changes for the other groups of disorders you cite. Autoimmunity alone is something that encompasses a vast number of disorders arising through different physiological mechanisms at different timepoints. If you truly want to know the answers to your questions--if you are "stunned" that changes in diagnosis can account for much of the increase in autism diagnoses--I really, sincerely suggest that you do some research. PubMed is a good place to start.
I didn't "say" that your situation arises from genetic mutations. What I said is that it is common for new mutations to arise leading to the manifestation of a genetic disorder in a lineage in which it was previously absent. Again...this requires that you learn something about it to gain a better understanding of what you're trying to discuss.
Regressions at a specific developmental timepoint occur ALL THE TIME with what you would consider "strictly" genetically heritable disorders, including Rhetts and tuberous sclerosis and many others. Often, a disorder won't manifest until a developmental period arrives that either highlights something that is missing or triggers the physiological response that we see as symptoms. And it has nothing to do with vaccines, even though several of these show up around timepoints along the vaccine schedule. What would you expect? The schedule occurs throughout the early years of childhood. ANY developmental disorder that manifests in childhood is going to show up right around some vaccination timepoint.
In addition, accumulating research suggests that there are early signs of autism that have previously been overlooked, leading to the perception in at least some cases that development was "normal" to a certain timepoint. My youngest son is an excellent case in point. Had I not been aware of some of the signs of retained reflexes and motor manifestations prior to his first birthday, I might have thought that his loss of his single word and two gestures just after 12 months was related to something else, like vaccines. But we already knew he had "issues" and he'd already been in therapy for those issues for several months when that sign emerged. We pretty much saw it coming because we knew what we were seeing. His autistic signs didn't start at 12 months--he was born with several, but even a few years ago, they wouldn't have been recognized as such.
You ask: "Where are all of the adults with autism? Now, I'm not describing those with asperger's or who are high-functioning enough to work and support themselves. I'm talking about adults with autism who are non-verbal (or close to it), perseverate repeatedly and who are unable to interact with the world (in a way that allows them to care for themselves). Where are they?"
To answer your questions, I'd say look at the populations that were dx'd as MR in the '70s and are now in state homes and other facilities. This question has been addressed by others.
You're casting around for some invisible something to blame when there are perfectly good, established, and often well-researched explanations already available.
Posted by Emily Willingham on 01/28/2009 @ 10:25AM PT
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@Jennifer - Would you please share the links/articles/reports where you located your information about Wakefield being involved in vaccine creation. I could not locate anything to substantiate your allegation. I have never heard such a thing.
Posted by Jody Mack on 01/28/2009 @ 11:58AM PT
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There is a complete account of Wakefield, including his patent for a "safer measles vaccine," in _Autism's False Prophets_ by Dr. Paul Offit. And online at:
http://www.timesonline.co.uk/tol/news/uk/article391141.ece
http://briandeer.com/wakefield/vaccine-patent.htm
Posted by Kristina Chew on 01/28/2009 @ 12:07PM PT
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As someone with experience in procuring patents, I can tell you that Dr. Wakefields assertion, namely that the "vaccine" part of that patent application was added as an afterthought, appears to be true.
It is not at all uncommon for a patent drafter to cast as wide a net as possible when drafting a patent, and often times the decision to draft the patent much more broadly is entirely at the discretion of the patent attorny or the patent agent. In fact, a patent drafter who does not draft the patent as broadly as possible is not doing it right.
A careful reading of the patent application in its entirety makes it quite clear that the initial intention of the patent application was for a treatment for MMR mediated disease, and not for a vaccine.
Posted by Amom whoblamesva... on 01/28/2009 @ 09:35PM PT
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thanks----Dr. Michael Fitzpatrick wrote this in 2004:
http://www.spiked-online.com/Articles/0000000CA7C7.htm
The failure to note that he was being paid by lawyers who were suing vaccine manufacturers is noted here (I put up this link elsewhere too):
http://arstechnica.com/science/news/2007/01/6446.ars
Posted by Kristina Chew on 01/28/2009 @ 09:50PM PT
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Yes, there certainly has been quite an effort to throw Dr. Wakefield under the bus. I think it is a shame, Dr. Wakefield has done a lot to help allieviate suffering in children who unable to speak for themselves. Fortunately, now there are many children who can speak again thanks to the work Dr. Wakefield, and their parents will continue to sing his praise.
Posted by Amom whoblamesva... on 01/28/2009 @ 10:26PM PT
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I kind of think Dr. Wakefield could have avoided all of this fuss, if that's the word for it---and setting off a public health scare about vaccines and autism----by proceeding a bit more carefully in announcing the results of the Lancet paper.
Posted by Kristina Chew on 01/28/2009 @ 10:38PM PT
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Kristina, I looked at the article you posted written by Fitzpatrick. In looking at the patent application, I could not see the contents alleged in Fitzpatricks report, which had a laundry list of animal ingredients I did not see in the body of the application itself. But, truthfully, I skimmed that part. The part of the application that really matters is the claims, at the bottom. Definately no animal parts there. Further, the experts cited by Fitzpatrick said the applicataion was, I believe, 'strange'... which, of course as a vaccine patent it would be given that wasn't the original intent in the first place.
Regarding the failure to report being paid, I dont' know if that was an oversight or what. But, I do know that people who are charged are not always convicted. (Google the innocence project to learn about people convicted but later exonerated via DNA - so not everyone even convicted is guilty). I don't think Wakefield is any more than human, and thus capable of making mistakes. The more important issue is his intent. And, I think his heart is and has been in the right place.
Posted by Amom whoblamesva... on 01/30/2009 @ 09:11PM PT
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I don't think what's in question here is whether or not anyone has their heart in the "right place," but what the science says, and that is that there is no link between vaccines and autism.
Further details are provided in Dr. Offit's _Autism False Prophets_.
Wakefield's planning a "rival vaccine" was also reported in other sources, such as the Times.
http://www.timesonline.co.uk/tol/news/uk/article391141.ece
Posted by Kristina Chew on 01/30/2009 @ 09:33PM PT
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The link doesn't work? 'rival vaccine' - thats crazy and not at all substantiated by what was in the patent application I saw. Poor Dr. Wakefield, I suspect the law firm who drafted that application was not employed by Dr. W, but rather by the hospital. Consequently, Dr. W has no ability to persuade whomever drafted that application to speak up and corroborate his explanation. Yes, the inventor signs the application before it is submitted. But, it is the drafters job to make the initial patent claims as broad as possible at the onset. Anything in the claims needs support from the description. Its pretty clear the vaccine part was added in at the end, to allow the claims to be drafted more broadly. You shoot for the moon and duke it out as prosecution proceeds and, hopefully, in the end you have a patent. Typically the claims are amended and narrowed significantly as prosecution proceeds. To vilify Dr. Wakefield over this patent application is just wrong, but it is not obvious without any 'skill in the art' of patent prosecution, perhaps.
As for what the science says... sorry, I'm too neurodiverse (my opinions and analysis, which originate in my neurons, come to a different conclusion, hence neurodiverse). Science can't tell me my family's experience was different than it was. You know the saying, 'liars, damned liars, and statisticians...' I know well patent prosecution and I can extrapolate quite nicely as to what is going on.
Posted by Amom whoblamesva... on 01/30/2009 @ 11:08PM PT
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None of these details matter in regard to what Wakefield did or did not do. What matters is that his results have not been replicated.
http://www.timesonline.co.uk/tol/news/uk/article391141.ece
As noted in other threads on this post, there are quite a few reasons as to why Wakefield has been called before the General Medical Council in the UK on the charge of concerns over his medical ethics.
Posted by Kristina Chew on 01/31/2009 @ 07:26AM PT
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Thanks for posting the link again. The article mentions Dr. Wakefield 'was also' attempting to get a patent for treatment, as well as a vaccine. Are there in fact numerous patent applications? Or was the article speaking of the one patent, originally intended for treatment then broadened to also cover a vaccine, as two patents? (and if so, can you agree the article is intending to cast Dr. W in a bad light with that characterization?)
The patent application I saw didn't have Dr. W's name on it, rather it just had the name of the hospital he worked for. It is common at hiring for an employee to sign over to the employer any rights to any patents resulting from their employment. Typically, in those cases the inventor receives only nominal compensaton for an issued patent, if that, while the patent and all rights thereto are assigned to the employer. Without further information to the contrary, the safest assumption is that Dr. W would not have materially profitted from any patents resulting from his employment with the hospital. Dr. W would merely be the inventor and the hospital would be the assignee. Assignees profit from patents, not inventors. So, it is particularly troubling for me to see Dr. W castigated because he was the inventor on a patent application given he wouldn't have profitted if a patent issued from the application anyway.
In my opinion, it hardly matters if someone, someone who may well have a vested interest in the outcome of any study they do, replicates his findings. What does matter to me is whether the treatment theories that stem from Dr. Wakefield's work have merit. As best I can tell, they do. Some autistic kids have underlying bowel disease, and treatment of the bowel disease ameliorates autistic symptoms. Autistic symptoms notwithstanding, the children feel better when their bowel disease is treated.
I don't doubt that there is a 'full-court press' effort to vilify Dr. Wakefield. Let him have his day in court before concluding he is guilty. I don't know if he will get a fair trial, but let's not equate charges with convictions. I don't think any of us would emerge from scrutiny like he has endured without some allegation of wrongdoing.
Posted by Amom whoblamesva... on 02/01/2009 @ 12:17AM PT
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Thanks for your persevering in considering the details of the patent application. I think the ethical concerns about Dr. Wakefield are clear, in particular the payments he received from vaccine injury lawyers that were not disclosed at the time of the Lancet publication.
http://arstechnica.com/journals/science.ars/2007/01/02/6446
Posted by Kristina Chew on 02/01/2009 @ 12:24AM PT
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You are welcome. I haven't read Brian Deer's complete reporting in regard to the patent application, but he seems to use it to cast Dr. W in a bad light. Thus, this appears to be just another example of how much futher you actually have to dig before you can believe what you read in respect to autism and vaccines.
So far as Dr. Wakefield's ethics, parents of autistic children who knew him at the time report that Dr. W persisted to disclose his findings despite being warned that the vaccine manufacturers he was investigating were major financial supporters of the hospital. (See below link) I think it is quite ethical to stand up for what you know is right, especially if if standing up comes at great personal expense. Dr. Wakefield was trying to help children with autism, and he has and he continues to stand his ground at great personal expense. He may have been naive to not report his legal aid, but not reporting legal aid does not discredit his findings.
http://briandeer.com/mmr/vaccine-mail-1.htm
Posted by Amom whoblamesva... on 02/01/2009 @ 12:21PM PT
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Thank you Amon...very well said. One thing that keeps being repeated..Dr. Wakefield being paid by the lawyers...OMG...does anyone realize what the pharma company pay's out for research/science to be in their favor? For the FDA to pass medicine/vaccines with very little research? All proven to be passed as safe..yet, only after it injures and kills is it removed. This is the game of pharma..lobbying and big bucks flow..just get the government to protect from liability. To act as one man didn't report an income, let's look at the complete medical field..doctor's included. Dr. Wakefield is a victim of medical politics..no matter how you spit it out.He was looking for a treatment to help the children..not harm them. If he did research and proved something to help them and if he also researched and found a better MMR or what caused the bowel problems..he is the better man. Stepping on toes hurt the pharma's ego. The only reason, in my opinion, Dr. Wakefield may have found a cure for some children and as the medical field stands, cures are not found for many illness or disease. Wonder why?????? Is this the piece of the puzzle missing in autism?
Posted by marilyn abdilla on 08/26/2009 @ 02:05AM PT
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@Kristina - Thank you for your last comment - "We're definitely interested in discussing the science of autism and the latest research."
I'm glad that you are open to discussions, such as these.
Posted by Jody Mack on 01/28/2009 @ 12:01PM PT
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I regret you had a different assumption.
Posted by Kristina Chew on 01/28/2009 @ 12:03PM PT
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@Becky - I also have two children on the spectrum and can relate to a lot of what you said. It is important to have balance - I agree! While I choose not to focus solely on any one dimension of "autism" (or topics associated with it), I try not to ignore any particular topic either. All areas need to be respected and discussed - and acted upon! - incl. education, adult services, early intervention, medical care, social services, etc. We cannot overlook any of our children's needs.In terms of a "cure", whether or not we can find one - or effectively prevent autism - there is no chance of doing so without looking for a cause. I don't look critically at vaccines, due to the pharmaceutical company's "deep pockets", but rather - due to reading quite a bit about the subject. The more books and article I read, the more videos that I watch - the more concerned that I become. Even vets are expressing concerns about the animal vaccination schedules. How can so many professionals be wrong about vaccine risks? My stepfather had cancer removed - from his smallpox injection site. I guess that could be considered a "coincidence". I suppose someone could say that we don't use that vaccine any longer, why bring it up. Since I have had a vaccine reaction and a loved one has had cancer in shot site, it is important to me that we don't absolve vaccines prematurely. If they are causing (or contributing) to the epidemics we're seeing today, then they need to changed (or abandoned). Imagine if they are the shots and somebody already has "proof" - what if you children suffered needlessly? Why force any other child to face autism - if they don't have to? Ending this epidemic won't take the focus off of our children, it will only free up resources to help them. There will be less people demanding services of all kinds.
We need to love and care for people with autism - that includes treating legitimate medical issues. For my kids, when we addressed their food allergies/intolerances by changing their diets, they felt better and were able to participate at school. We use various supplements to address other (doctor identified) deficiencies and issues. Three years ago my daughter was non-verbal and my son could not stay in his seat at school. Today, my daughter is able to speak, read, write and better able to participate in social activities. My son is above grade level and although still hyper - he does not come home with a daily behavior report. Are they "cured" - definitely not. However, they "feel better" and are doing better at school. They have less tantrums. There are less tears.
It's interesting how parents on both sides of the biomed (or DAN) issue seem to view one another. I wouldn't call anyone shrill. It just seems like so many families are hurting. Too many families are struggling with unmet needs and overwhelming demands. It is hard enough to raise a typical child (whatever that means) in today's fast-paced, everything must be perfect world - our families face an unimaginable battle to help out kids succeed.
Posted by Jody Mack on 01/28/2009 @ 12:27PM PT
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@Emily - Simple questions. Is autism genetic or environmental? Are there risks to being vaccinated?
Posted by Jody Mack on 01/28/2009 @ 12:37PM PT
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@Kristina - Thanks for the Wakefield link.
As far as "assumption" - I try not to assume. Many of the comments just sounded very "pro-vaccine". The more I have learned about vaccines, the more concerned I have become. I choose not to focus on Wakefield, Harris Coulter, David Kirby, Neil Miller, Offit or any other single professional who writes about vaccines. I try to read a variety of books and articles. Dr. Offit is a tough one for me to read, due to his role in developing vaccines and personally benefitting financially from them. I still read the link you sent. I still read some of his blogs and articles. But, I tend to be extra cautious when reading positions by individuals who have a "conflict of interests". Hopefully, we all give these individuals extra scrutiny!
"Vaccines are principally responsible for the increase of those two really dangerous diseases, cancer and heart disease." (Dr. Benchetrit, practitioner)
"I am convinced that the increase of cancer is due to vaccination." (Dr. Forbe Laurie, Medical Director of the Metropolitan Cancer Hospital, London)
"I have removed cancers from vaccinated arms exactly where the poison was injected." (Dr. E.J. Post, Michigan practitioner)
"I have no hesitation in stating that in my judgement the most frequent disposing condition for cancerous development is infused into the blood by vaccination and re-vaccination." (Dr. Dennis Turnbull, 30 year cancer researcher)
Posted by Jody Mack on 01/28/2009 @ 01:09PM PT
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Hey Kristina - the threaded comments aren't working, I can't reply to yours!!! LOL
Posted by Moi Bloggg on 01/28/2009 @ 01:20PM PT
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I'm able too----what browser are you using? Quote and mention me to reply, lol indeed.
Posted by Kristina Chew on 01/28/2009 @ 02:51PM PT
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Jody--
You wrote, "Simple questions. Is autism genetic or environmental? Are there risks to being vaccinated?"
As I've said before, ANY gene is under environmental influence. Thus, your posited dichotomy between the two is a false dichotomy. Autism is both. The majority of mechanistic studies suggest a multifactorial inheritance. Twin studies suggest a strong genetic component. Your question is not "simple" by any stretch, but at least it's focused.
And I've indirectly responded already to the second question. Of course there are risks to being vaccinated. There are risks to breathing. There are risks to eating. There are risks involved with every single thing we do every single day. And every day, we make rapid calculations about whether the benefits of doing that thing outweigh the risks. And in the case of the vaccines we use today, the overwhelming--OVERWHELMING--evidence in terms of risk-benefit is that the benefits >>>>>>>>>>>> the miniscule risks. They just do.
If I'm not mistaken, the "Dr. Forbe Laurie" guy you quote up there lived in the 19th century. The "Dr. EJ Post" seems barely to have survived into the 20th century. Etc. If you're going to cite from something that was written/published 1957, you should also be aware of how extraordinarily ancient that is in the field of medicine, especially in the field of vaccines.
Posted by Emily Willingham on 01/28/2009 @ 02:13PM PT
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Emily -
Genetic make-up varies between individuals. We all have organ systems that are more susceptible to damage. "Sensitive" systems will differ from one person to the next. Let's say - those posting on this board - "we" might have more "sensitive" neurological and/or GI systems. My neighbors - they have more "sensitive" lungs. My postman - a more "sensitive" pancreas. When were exposed to the same toxin - "we" get autism/ADHD/alzheimer's/etc. My neighbors get asthma. My postman gets diabetes. We're not all made the same, so toxins are going to damage different systems.
When someone is vaccinated, we are introducing numerous toxins into their body. If they don't detox properly, then those toxins will impact the body system that is most susceptible - based upon their genetic profile. Who can claim that the benefits of the vaccines outweigh the risks? We can't - if the risks have not not been fully (and honestly) disclosed. I had chickenpox - I wasn't permanently disabled from it. What if my daughter's varicella shot caused (or contributed to) her autism? Then the risk of the shot is so much greater, than the risk of the disease. Look at Merck's vaccine inserts. They list all kinds of symptoms and side effects. They admit danger - why are you trying to minimize the risks that they are disclosing? They never tells us exactly how dangerous they are...probably, because most people would never think to blame their vaccines for their health issues. I heard that 10-15% of vaccine reactions are reported to VAERS. It seems impossible for anyone to accurately say the rates of vaccine side effects today. But, they are obviously much higher than are being disclosed to us.
In terms of the people that I quoted, my point was to avoid Wakefield and other "popular" activists that we commonly hear from today. It was also to show that vaccines have been an issue of concern for a LONG time! Why are we repeating the same patterns and mistakes - over and over again? Why did people express concerns about vaccines 50-100+ years ago - and we are still using poor studies to quote from (when people try to argue about their "safety")? Well, if they exclude all of the underweight, premature, ill and disabled children from the vaccine studies - don't you think the results will be skewed in their favor? We should all be asking for good, high quality studies that utilize existing populations.
What about this link -
http://childhealthsafety.wordpress.com/2009/01/28/cdc-fraud-tax-dollars-and-italian-vaccine-mercury-study/
What are your thoughts? I know that you've said that I'm not "focused", but the link touches upon allergies and other things I've brought up in other posts. What I'm saying is not "all over the place", but I agree that it can be overwhelming to face the fact that we've been harmed and hoodwinked for so long.
Posted by Jody Mack on 01/28/2009 @ 06:06PM PT
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Regarding the blog you cite ("childhealthsafety")----that's an unsubstantiated online site, at least regarding the authors.
Scientists can't say that any vaccine is "100% safe" the way one might wish they could-----in science, there's always a need to leave open the "what if." Ultimately, it's not about being "hoodwinked," but about whether or not studies and results are replicable. Today's post on the history of the MMR vaccine and autism by Kev Leitch describes the numerous flaws in the studies and other efforts to prove a vaccine-autism link.
Posted by Kristina Chew on 01/28/2009 @ 06:19PM PT
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Kristina - I am using Firefox. Here's what I saw from your last post - notice the word Reply isn't there!!!
I'm able too----what browser are you using? Quote and mention me to reply, lol indeed. Posted by Kristina Chew on 01/28/2009 @ 02:51PM PST Report close Please report any offensive or inappropriate content.
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Posted by Moi Bloggg on 01/28/2009 @ 06:12PM PT
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Well Reply is at the end of My signature. Maybe the blog is letting you get the last word in the threads, lol.
Posted by Moi Bloggg on 01/28/2009 @ 06:13PM PT
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now that wouldn't be right!
Posted by Kristina Chew on 01/28/2009 @ 06:15PM PT
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Jody, I'm sorry, but your entire latest post shows that you don't really understand what you're talking about, and to reply to that farrago of mishmashed this'n'that is really well nigh impossible. Use "Existing" populations? What else would we use? "Nonexistent" ones? Do you know how these studies are done? This is so tiresome. I've said this to other posters at AutismVox, but it really is important to educate yourself about what you're discussing before you embark on these wholesale queries.
I'm not "trying to minimize" any risks about vaccines. I am stating what ought to be glaringly apparent. The risks of vaccination are miniscule compared to the risks of not vaccinating. Jesus, this stuff gets old. What you are going on and on about IS "all over the place" biologically speaking, argument-wise, history-wise, information-wise...it's just meandering. Your opening paragraph alone requires about six textbooks worth of information to address in all of its fallacious glory.
Posted by Emily Willingham on 01/28/2009 @ 06:55PM PT
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@Jody, see my comments in regard to the link to Wakefields patent application above. I can assure you that the doctors at Thoughtful House are top notch, and many if not most of their patients have benefitted from their care. Some patients quite dramatically.
Try not to be discouraged by the ad hominem attacks you will get from disagreeing from everyone who thinks attempting autism recovery is a bad thing, or who wrongly asserts that vaccines have been completely exonerated. Vaccines have not been exonerated, despite the many flawed studies cited to 'prove' otherwise.
I can't figure out why there is such a divide here. I don't know if it is like investing, where some people are so risk averse they want only the slowest growing investments or developmental improvements and some people are more tolerant of risking a little more in exchange for bigger payoffs or developmental gains up to and including complete recovery, or what. Our pediatrician advised against GFCF because we would be risking wasting money and time, he could give us no other reason not to undertake the risky behavior of trying dietary changes. I honestly can't understand why some parents are so vehemently opposed to doing things which help children feel better, sometimes losing autistic symptoms in the process. Why is that so wrong? And, if the parents who use biomedical interventions and believe their kids got healthier as a result are mistaken, and their kids would have gotten healthier and lost their developmental delays and diagnoses regardless... WHERE ARE THE OTHER KIDS WHO LOSE DIAGNOSES WITHOUT ANY BIOMEDICAL INTERVENTIONS? Really, where are they??
Posted by Amom whoblamesva... on 01/28/2009 @ 10:11PM PT
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The "divide" is quite apparent in any popular discussion of this topic, even though the scientific studies show, more and more, that there is no link between vaccines or something in vaccines and autism.
Posted by Kristina Chew on 01/28/2009 @ 10:36PM PT
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And not that those who think that vaccines or something in vaccines can be linked to autism have never made _ad hominem_ and, indeed, _ad feminam_, "attacks," or built their arguments on such accusations.
Posted by Kristina Chew on 01/28/2009 @ 10:55PM PT
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There is significant disagreement regarding whether conclusive studies have been conducted. There remain more questions than answers with respect to the relationship between autism and vaccines and/or other environmental factors.
However, in this forum, one who remains in the camp that needs to see not just 'scientific' studies but well-designed scientific studies before they can believe there is no link between autism and vaccines is treated very disrespectfully.
Those who are so neuro-diverse as to think the jury is still out on any vaccine-autism correlation apparently don't warrant acceptance?
Posted by Amom whoblamesva... on 01/29/2009 @ 01:34AM PT
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There _are_ plenty of scientific studies, "well-designed," published in peer review journals etc. etc. that are adding to the body of evidence refuting a vaccine-autism link. Dr. Steven Novella writes pretty regularly about these on the Neurologica blog:
http://www.theness.com/neurologicablog/
And of course, Dr. Offit's _Autism's False Prophets_ and Dr. Michael Fitzpatrick's _Defeating Autism: A Damaging Delusion_ have more information about studies and the like.
Don't worry, Diane, I've received all manner of comments and been satirized and been pilloried (though not as much as some)-----bring it on!
Posted by Kristina Chew on 01/29/2009 @ 08:46PM PT
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@Kristina, I'm sorry you think I was attempting to ridicule you when I asked whether acceptance was warranted for those of us who are so neuro-diverse as to think the jury is still out on a vaccine/autism connection.
I disagree with those who state that vaccines are exonerated. But, I don't intentionally belittle them, question their education, question their intelligence, or go on and on about how tiresome they are because they disagree with me, etc. I don't claim to know what causes autism, furthermore I don't believe anyone can say what doesn't until they know, predictably, what will and does.
Wouldn't 'neurodiversity' explain reasonable people looking at the same information and coming to different conclusions? I can't be the only one who finds the intolerance here a bit ironic, can I?
Posted by Amom whoblamesva... on 01/29/2009 @ 10:25PM PT
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In answer to your question, that might perhaps be more the notion of a diversity of opinions? (And by the way, Ralph Savarese has a book entitled _Reasonable People_, about his adopted son, neurodiversity, disability).
The disputes seem to be over science and what is considered valid, evidence-based, research. I can see why it might be thought that there's a link between vaccines and autism, but the bulk of the studies don't point to that----but people have their experience, their narrative of what happened. It is a lot to sort out.
And I always appreciate a lively discussion----I really meant it when I said, bring it on.
Posted by Kristina Chew on 01/29/2009 @ 10:40PM PT
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The Blogger Prometheus has a new post with graphs depicting the rates of autism and mental retardation for the years 1993-2007. Very interesting!
Posted by Abigail Adams on 01/29/2009 @ 05:54AM PT
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Oops, forgot the link, here it is:
http://photoninthedarkness.com/?p=158
Posted by Abigail Adams on 01/29/2009 @ 05:55AM PT
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Good stuff.
I really do think my son would not have been diagnosed with autism in a previous generation, but with mental retardatio.
Posted by Kristina Chew on 01/29/2009 @ 08:41PM PT
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The graphs go back to 1993...but, the autism rate was rising before that. It really started to spike in the late 1980s and early 1990s. Are there graphs going back that far "proving" the Prometheus's theory? Here are the rates that are frequently quoted:
1980s - 1-2 per 10,000 children in the U.S. w/autism
1990s - 1 in 500
2000 - 1 in 250
2004 - 1 in 166
2009 - 1 in 150
There was a huge change in the "undocumented" time frame that encompassed the 1980s and 1990s. Has it really taken us thirty years to deferentiate MR from autism? Convenient how there aren't graphs that cover the first 20 years of this autism epidemic. I am interested in seeing if we would see the same pattern that Prometheus promotes - if we had those years graphed too.
As far as MR and autism. There are a lot of kids with autism that are coded with MR too. Are they on both lines of Prometheus's graphs? Or just the "autism" one? My son was never a candidate for MR, but they almost tagged by daughter with that label - when she was completely non-verbal. Now, she doesn't qualify - although she still struggles through assessments, due to her attention span and reduced verbal abilities.
Posted by Jody Mack on 01/30/2009 @ 01:05PM PT
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Hi Jody, I don't think it's that it took people "so long" to distinguish between MR as a formal diagnosis and autism as a formal diagnosis. Changes in the DSM, in the influence of psychology and psychiatry, in the understanding of "mental health," disabilities and many other factors, have all led people to understand mental retardation and autism in different ways than they had in the past.
Posted by Kristina Chew on 01/30/2009 @ 01:37PM PT
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Kristina - thank you for continuing to respond!
What accounts from a change from 1 in 10,000 to 1 in 500 rate of autism within a decade?
Where can I see that graphed out vs. MR? And where do MR autistic individuals fall on the graphs? On both? Or just autism?
Thanks!!!
Posted by Jody Mack on 01/31/2009 @ 01:44PM PT
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Significant changes in diagnostic criteria, heightened public awareness, earlier detection of autism, declining usage of diagnoses such as mental retardation----I wrote about this topic here:
http://www.autismvox.com/better-diagnosis-and-so-called-epidemics/
Roy Richard Grinker's book _Unstrange Minds: Remapping the World of Autism_ cogently brings together the reasons for why there seems to be an "epidemic" of autism.
I'm not sure where to find the graphs you are looking for but this article by Paul Shattuck discusses how the use of "autism" as a diagnostic category in special education arose at the same time as "mental retardation" declined.
http://pediatrics.aappublications.org/cgi/content/abstract/117/4/1028
Posted by Kristina Chew on 01/31/2009 @ 01:50PM PT
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Diana, Thoughtful House preys on people who have money and who are emotionally vulnerable. There's a reason they're not sited on the other side of I-35, their stated mission notwithstanding. "Dr" Wakefield is a charlatan who has taken blood from children at a birthday party, a clear violation of established research ethics. I wouldn't trust that man near me, much less my child.
You say "ad hominem" attacks yet accuse parents who don't try unproven, physiologically impossible "treatments" as risk averse. OK.
And there's not "significant" disagreement among actual scientists about whether conclusive studies have been conducted or not.
Posted by Emily Willingham on 01/29/2009 @ 06:04AM PT
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For benefit of readers not in Austin, TX, I-35 is the geographical boundary between the haves and have-nots. It may very well be that economic factors drive parents' decisions on what treatments they can use and I apologize for not being more sensitive to that.
Posted by Amom whoblamesva... on 01/29/2009 @ 07:34AM PT
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And the divide arises from the fact that some people, when confronted by shrill, strident, accusatory conspiracy theorists who wouldn't know basic science if it walked up, bit them on the butt, and said, "Hi, I'm Basic Science" make other people want to put on our ear muffs.
Posted by Emily Willingham on 01/29/2009 @ 06:06AM PT
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And that was garbled, but you get the idea.
Really...there's just no point in expending energy like the Red Queen in Alice on this kind of thing. Ignorance is bliss, apparently, or at least a great reason for a lot of hand wringing and time wasting.
Posted by Emily Willingham on 01/29/2009 @ 06:09AM PT
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I assure you that I am not one who would not know basic science. That is at least one reason I can recognize a flawed study when I see one.
Further, we certainly don't feel preyed upon by Thoughtful House. Did you look at the link I provided to Thoughtful House? Did you see the picture of the kid hanging over the sofa arm? Before we went to Thoughtful House, my kid did that. And much worse. Now, he has no autisitic symptoms.
If I took my kid to a birthday party at a doctor's house and he wanted to draw blood for a study, I would allow it if my child was agreeable. Since when has it become unethical to want to help children? And, yes, I figure my kid would be agreeable to a simple blood draw given he wanted to go get his IVs for chelation.
Further, I didn't accuse parents of anything, I am just trying to understand parents who take the "oh all those other parents must be making all that stuff up" approach. ALL those parents, ALL that stuff.... Besides, many people would not take offense to being called risk averse, some would even consider it a compliment. But, what can I say? I am arguing with someone who has taken an approach, leave my child hurting and ill, that I would not, could not, and did not fathom.
Posted by Amom whoblamesva... on 01/29/2009 @ 07:00AM PT
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Is there any way to opt out of the comments???? (sigh) I am really tired of all the emails.
Posted by Moi Bloggg on 01/29/2009 @ 07:13AM PT
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Moi - You can click on the box, under the red "Comments" heading, below Kristina's blog to unsubscribe to the comments (and emails). Have a nice day!
Posted by Jody Mack on 01/29/2009 @ 07:40AM PT
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I assure you, I never tire of following any of this!
Posted by Kristina Chew on 01/29/2009 @ 08:40PM PT
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Thanks!
Posted by Moi Bloggg on 01/29/2009 @ 07:50AM PT
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Diana, if you know even basic science, you know that it is extraordinarly unethical to draw blood at a children's birthday party, for any reason, in the name of science. There are institutional codes governing these things that require approval of the institution's ethics committee and that at the very least must follow Helsinki protocols, and no peer-reviewed journal would publish results from a study that got their information otherwise. He had to have known, I only hope, that what he was doing was wrong. If he didn't, I'm not sure which was the more egregious defalcation of his duties. And how 'bout that suit with the child with the perforated intestines? Nice stuff.
You did accuse parents of being "risk averse," with the strong inference to be drawn that SOME parents are willing to do whatever it takes for their kids, while OTHER parents are far too cautious and sheeplike ever to be able to see through the vast global conspiracy that is vaccines. It's the common tenor from Wakefield et al. devotees.
BTW, the kids at the party? They weren't agreeable. Some sobbed. One threw up. Sounds like a GREAT birthday party.
Thoughtful House is perfect for folks like you. I have no doubt. And they know it. I don't need to look at the link to Thoughtful House (again). I've spent plenty of time on that topic, I can assure you, including at their Website.
I do not understand what you are saying with your last sentence. I've explained what I've inferred from your comment about "risk averse" parents. If your last comment is in some way intended to imply that I have anything to say about parents who do what they feel is right for their child, you are wrong. What I get unhappy about is when those parents choose to villify me and my parenting choices, asking HOW it is possible that anyone in their right minds could POSSIBLY have their child vaccinated or not POSSIBLY have their child on GFCF or not POSSIBLY be checking out chelation or Thoughtful House, ad nauseum. Or...that we're "risk averse. Or that we need to crawl back under our rocks.
And I also take issue with the rampant misinformation that is spread around on sites like these and parenting boards about vaccines because I know that the ultimate outcome of this viral garbage is death.
Posted by Emily Willingham on 01/29/2009 @ 11:52AM PT
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Funny, none of my science classes had a heavy emphasis on ethics. I don't think taking blood samples, even as you describe, is particularly egregious, sorry. If I had to choose between having my kid giving a blood sample (even at a birthday party) or getting several shots in one day like he did at 12mo, I'd choose the former if I had to do it over again. Noone has ever tested vaccinations together as they are used. Further, I am interested in the 'ethics' and 'good science' that can support giving HepB vaccinations to babies only hours old. How do you ethically test on babies hours old? How can good science support administering a vaccine to ALL babies, regardless of relative risk for HepB, at that age without testing it fully? I think the medical establishment is incredibly arrogant, HebB just one example of that. Remember, they call it 'practicing' medicine for a very good reason. There is at least as much that is not understood about the human body as what is understood. There is some art involved in the practice of medicine.
You seem to completely have misunderstood my risk averse comment. Some parents are terrified of doing anything that could make the situation worse. Thus, they are risk averse. I can't say that is a bad thing, I honor each parent's intuition for their own child. I would, however, caution anyone who tries to discount their own intution in view of what any of the experts say, regardless what side that expert is on. Further, I think some parents are risk averse such that they fear doing more than one supplement, for example, at a time. If anyone knows even basic experimental design, they know that single variable experiments are a very bad idea. Unfortunately, I think some parents are so risk adverse as to take a single variable approach, going thru interventions by rote and declaring they don't work when in fact some interventions work together. But, some children are much more sensitive than mine is, some have much worse symptoms, and I can understand why a parent would feel afraid of doing more harm. I myself was somewhat risk averse to doing IV chelation therapy, putting it off for a very long time and I now regret that. After the first treatment, my son wanted to go get the IVs (yea, I was shocked, too). Overall we saw improvement following IV chelation, but the most striking is I have realized I no longer have to prompt him to 'look at my eyes'...
'Thoughtful House is perfect for folks like you' - what is that inflammatory statement supposed to mean? Perfect for parents like me who want the best for her child? Perfect for parents who expect autistic symptoms to wane with medical treatment, and find they get what they expect? Perfect for parents of autistic children who will get better on their own anyways, so its just coincidence that the improvements correlate with treatment at Thoughtful House? Your "everyone who doesn't agree with me is stupid" attitude, and your "oh, parents who think the results are from biomed are mistaken, improvements were inevitable' attitude are highly offensive.
You are offended by parents who don't understand why you don't want to try what helped their child??? Would you be offended if your child was myopic and parents of other myopic children suggested glasses?
You honestly think we are all just crazy? Maybe you could get someone to do a study on why all the 'crazy' people have kids with this transient form autism, which will get better on its own and mysteriously has onset coincident with vaccinations or at least the crazy parents manifest this coincidental relationship in their minds. Further, you could study why miraculously this type of transient autism is immune to the obviously very harmful effects of biomedical interventions, even harmful biomedical interventions won't prevent transiently autistic children from appearing increasingly NT. Finally, you can figure out where all these transiently autistic kids are who have not had any biomedical interventions. Now that is a study I'd like to see.
BTW - you mentioned the ultimate outcome of the vaccine information being spread is death. Is that death of an industry that may or may not have your best interests at heart, or what? Is it death of a mechanism that has undermined survival of the fittest? I think it is very difficult if not impossible to separate the benefits of improvements in sanitation, etc, coincident with the introduction of many vaccines. Its never a bad thing to keep asking questions. Further, if vaccines are so great, then get vaccinated! If they work, why are you worried what anyone else does if you are vaccinated?
Posted by Amom whoblamesva... on 01/30/2009 @ 07:53AM PT
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It is irresponsible to state - "The risks of vaccination are miniscule compared to the risks of not vaccinating." Tell that to the people who have died or been permanently disabled by vaccines. Tell it to their families. Tell it to the parents and guardians who will likely spend the rest of their lives grieving or struggling to ensure that their child is as self-sufficient as possible - or, at least, is cared for in a humane way when they are gone. Between 1989 and 2009, 2328 "non-autism" VICP cases were adjudicated. Out of those cases, nearly half of the cases (1071) were proven well enough to have them deemed "compensable". Recently, one of those cases involved a girl with autism. She is listed with the "non-autism" cases. Her family must have been wise enough to see that no "autism" case had ever won, so their case instead hinged on mitochondrial damage that resulted in "autism-like symptoms". We will likely never know how many of the other "non-autism" cases involved children who have autism. Likely more than that "one". Keep in mind that most families NEVER file a VICP case. There is a three year statute of limitations. For some of us, it takes that long to really "believe" that vaccines can cause harm. For most of my life, there wasn't a vaccine that I didn't like. Whatever the doctor recommended I (and my children) received. It took me a while to doubt the "safety" of vaccines.
http://www.hrsa.gov/Vaccinecompensation/statistics_report.htm
Before you say that a couple thousand cases show that the vaccine program is safe, look at the following link. It states - "About 12,000 vaccine-related adverse reactions are reported annually; however, it is estimated that less than 10 percent of doctors file such reports." So, if we argue that roughly 120,000 Americans experience vaccine side effects - is that acceptable? Do we consider that many people expendable? How about 12,000 a year - are they the acceptable "collateral damage" of a "one size fits all" mandated vaccination program?
http://www.answers.com/topic/childhood-vaccine-injury-act
I'm glad that Jesus was brought up...even if I don't agree with the approach used to do so. It allows us to confront the fact that none of us is God. Not one of us has all of the answers. Not one of us can effectively speak about each others' motives or experiences. We can only share our own personal opinions. That's all that any of us are doing here, as we discuss vaccines. We are sharing our OPINIONS. You can't prove that vaccines don't cause autism anymore than I can prove that they do. But, we can have a dialogue about our experiences, opinions and the information we have gathered. Those of us on opposite sides of the issue may not agree with each other. However, we can agree to disagree - without being disagreeable. It's a shame to see those who are so "sure" of their opinions, so easily "rattled".
If you want to say the "studies prove"...then, give us some legitimate studies. Don't give us those corrupt, "doctored" studies that are designed to prove exactly what the author of the study wants to prove. It's crazy to cite studies that have eliminated all "premature, underweight, disabled or ill" children. That's not a valid "population". That's a doctored one. Practitioners are giving "those children", that I just listed, the routine childhood vaccinations. They are not changing the schedule for them. Those kids get all of the shots - unless a parent objects. Most aren't objecting. As a result, the studies that are conducted should be representative of our society. Oh, and don't eliminate anyone based on "genetic" information or "family histories" either!
I get it. Really I do. Most people in the pharmaceutical, govermental and traditional medical "worlds" don't WANT a valid study into vaccines launched. If vaccines were proven to play a role in today's childhood "epidemics" (autism, adhd, asthma, diabetes, cancer, etc.) - then someone would be asked to take responsibility. Most people loathe admitting fault. Few voluntarily take personal responsibility. See "personal responsibility" is popular - until it's YOU who has done wrong. So, few are racing to do legitimate vaccine studies. If vaccines hurt lots of people then someone will have to pay for that damage. Someone will have to apologize. Someone will have to explain what we've done to the children, not just in America, but around the world. There's no race to do that. But, there should be. IF vaccines DO harm people, it's better to know it now then in 100 years. There's no need to harm one more person. You (or your child) will not receive more or "better" services by adding additional "victims" to the headcounts. Identifying a causal factor may; however, end the growing numbers and free up more services and supports for those alive who have already been harmed.
While I may not agree with all of you, I will take many of your comments and look further into the things that you've shared. Hopefully other posts won't be so heated and emotional. It would be nice if we could all learn to respect one another. Most of us are parents. We all want the best for our kids. We're more likely to see that happen by working to be more empathetic and fight with one another, instead of fighting one another. Don't we all already have enough battles to wage? Don't you have to struggle to have your child's educational needs met? Don't you fight for insurance coverage? Don't you argue to ensure that there will be adult services for your "too soon to be adult" child? It's fine to disagree, but what do we win by fighting? Moi got sick of the emails and wanted to stop them. If you're tired of this topic, click the box.
Posted by Jody Mack on 01/29/2009 @ 03:25PM PT
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It's not irresponsible to state that. It's a fact. It's statistics, but it's still a fact. Yes, for every medical intervention, there are personal horror stories, and on that level, I have no intention of dismissing those stories. I know some personally. But that doesn't detract from the practicalities of risk-benefit analyses. Ethics alone dictates that.
I've had an adverse reaction to vaccines. Two of them, actually. I never reported them. They were insignificant. Is that significant?
It's your decision to think that studies that don't say what you want are "corrupt" and "doctored" while choosing to believe those that do say what you want. I'm not anyone's mother here, and I'm not going to tell you what to think. You're obviously ascribing to some bizarre conspiracy theory involving thousands and thousands of people, and that's your prerogative. You also obviously aren't even remotely interested in learning what an actual scientist has to say or in the practicalities of disease prevention or any of the above, and I'm not interested in "fighting" with you either. I thought, initially, that what I was doing was "educating" and "clarifying," but one cannot do that to a mind that is shut up tight. I haven't felt terribly heated or emotional here. Just tired, as usual. It's always so exhausting to contemplate the sheer obstacles presented by the failure of science and math education in this country.
Posted by Emily Willingham on 01/29/2009 @ 04:10PM PT
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It seems significant to ignore reactions.
That would confirm the under-reporting of vaccine side effects. You bring up science and math, but I would second the concern about "ethics". I watched "Grey's Anatomy" last night (that's what some of us - who were not math/science majors - do, watch tv!) and the residents were screamed at for not treating the patients (and corpses) like the human beings they are (or were).
PEOPLE are being harmed by vaccines. It's not just statistics. It's lives!
Posted by Jody Mack on 01/30/2009 @ 01:20PM PT
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People, including us, would have been "harmed" by a number of diseases without having taken vaccines.
Posted by Kristina Chew on 01/30/2009 @ 09:29PM PT
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Respectfully, Kristina, there is just nothing that substantiates your claim that people would have been harmed by not having taken vaccines! That is the assumption, but it is not proven. Many times I have looked at the data for measles outbreaks, the majority of the people who contract measles have been vaccinated.
What a lovely racket! I'll sell you something to prevent an occurance, and when the occurance happens, I'll convince you to buy more of the same...
Posted by Amom whoblamesva... on 02/01/2009 @ 12:02PM PT
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Emily said: "I thought, initially, that what I was doing was "educating" and "clarifying," but one cannot do that to a mind that is shut up tight. I haven't felt terribly heated or emotional here. Just tired, as usual."
When I see these endless comment threads on this subject, all I feel is tiredness, too. And despair. You only need to see one or two comments to know that this isn't a conversation, or an argument. No one is going to convince anyone. No one is even going to be able to induce anyone else to truly think. The thought traps and circular 'reasoning' were obvious almost from the start.
"Studies need to be done. If the studies disagree with what I want to hear, they are doctored or biased, or whatever. Just keep going until we get a study that agrees with us (or seems to). Anything that says what I like to hear will NOT be doctored or biased, but expose a shocking truth, that was obvious to me and many other brave people for a long time."
This is pretty much all I read, no matter how it is worded. Time to move on to other matters. More important ones, maybe, but even if they are not, at least something that will matter.
Posted by Norah vd Stel on 01/29/2009 @ 04:35PM PT
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I'm glad that Kristina has more spunk than some on this board. I was going to send her a compliment, but I choose to make it "public" instead.
It's strange when people are so tired from something...and then they keep participating in it. This post is not a "mandatory activity"...unless, there is some secret pamphlet or book that only those who blindly trust vaccines receive - that orders you all to valiantly continue to chime in???
Posted by Jody Mack on 01/30/2009 @ 01:28PM PT
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I'm glad for everyone to post. I more than appreciate from hearing from Norah (and from yourself, Jody); Norah (and apologies for "speaking" for you, I'm not trying to!) writes from the perspective on someone on the spectrum herself, and I think we more than need to hear this.
Posted by Kristina Chew on 01/30/2009 @ 01:32PM PT
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@Norah - I wonder what you would think 'matters'. I am aware of at least a few autistic adults who have both posted on change.org and complained of GI pain. ( I believe 'burning gut' is a direct quote). So, it seems some comorbid medical conditions could 'matter' to everyone.
Somehow the search for answers has to be presented in a way that does not make the neuro-diverse feel that they are being minimized. If I have failed in that endeavor, I apologize because I would not want anyone to think I felt they were without value or less important for being who they are.
I wonder if it could be possible that both sides of the divide are 'right' - which would imply that not only do we not know what causes autism, but that there are multiple causal mechanisms if not two very similar but distinctly different conditions being diagnosed as autism.
Posted by Amom whoblamesva... on 01/30/2009 @ 02:16PM PT
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My intent was not to personally attack Norah. If I made her feel bad, in some way, I apologize.
I find it hard to believe why so many are so determined to exonerate vaccines while the science is still out. I'm all for sharing opinions and learning how others view this issue, but I don't see the needs for personal attacks.The thought that vaccines cause autism is scary. If you can't trust medicine - who can you trust? Is that it? We'll keep on damaging and destroying peoples' lives...but, those lives don't matter, because Dr. Offit says so? Or a handful of scientists - who may receive pharma payoffs?We're smarter than this. We can be more ethical too!
Posted by Jody Mack on 01/31/2009 @ 01:38PM PT
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