Autism

Rules and Timing

Published April 10, 2009 @ 10:00AM PT

close up of a clock face with brass colored roman numerals and hands, the time is 1:13. the surface of the clock is highly reflective, and the person taking the picture is a white male with short light brown hair and a white shirt. in the background there are a collection of people interacting and a window everything else is indistinct.Lots of news about Teaching Autistic Teens To Make Friends the past few days. The Program for the Education and Enrichment of Relational Skills (PEERS) at University of California Los Angeles has been (according to the articles with some success) teaching autistic teens some rules for typical teenage social behavior.

I'm pretty into learning the rules for how the regular people interact. Such rules can be extremely helpful to know in certain situations. Some rules may even serve a serious pragmatic health or safety function, such as PEER's teaching of "What do you say as a comeback when someone teases you?" Not so sure however if these rules are what actually leads to "meaningful relationships" (hold that thought), and also not so sure about how well rules will work for some autistic people in absence of accommodations from the other side (the point in this post).

I'm terribly attracted to anything shiny. A woman came to talk with me at a conference, and the first thing I noticed was a shiny thing around her neck. I made a purring trill sound and grinned and bounced and clapped, oooo shiny!

Later, something moving came at me the hallway. "______________" speech sounds / words, something pressed into my hand. A form in front of me, paused, then scurried away. I paused, head to side. What happened? Something in my hand. Open hand--object? What / where? Oooo, a woman--

"Dora, say thank you," my assistant prompts me.

Thankyou but--what-- "Thank you" cracked out of me seconds before I understand why I'd been asked to say it. OH! The form--the woman--it was the woman, she gave me her shiny!

Some time later, speech sounds finally hit long term memory. "I want you to have this," the woman had said.

Much later I realized the "shiny" was a spider encased in plastic; amusingly, I happen to be quite frightened of spiders (well, actually webs, but anything that makes 'em...). Nothing had really registered beyond the glint of light off the plastic when I first saw the bauble. (I've since put the shiny on my key chain as a reminder to have courage.)

See, I know I need to say "thank you" when someone gives me something. I know that rule full well, and I understand that me standing there doing nothing was rude. But the woman was there and gone before I'd even registered that there was a woman there at all. What I needed in order to complete the social exchange was both knowing the rule, and having the time to process what was happening.

From Aquamarine Blue 5's contributor Darius,

I still have problems in groups where there is too much information going on, or where the informational flow is too fast. I simply can't shift my attention focus quickly enough to the relevant part of the interaction process. Consequently, I miss a lot of vital information needed to interpret social messages. There is no such thing as adequate delayed social reactions. One is either quick enough to keep up, or one is weird and socially disabled.

Rules are useful but only if we are given time to use them. One rule I have is when people interact with me and I can't keep up, I immediately say, type, or press the key on my computer that automatically reads, "Could you please slow down, you're going too fast for me to process."

Share this Post

Related Posts

Comments (5)

  1. B B

    Dora, you seem to handle your communication problems with a lot of awareness and deliberate ways to handle them. Since I've never had trouble with speaking, I didn't realize I had communication problems until later in life. I wind up nervously talking too much, too fast, feeling awkward and trying to find graceful ways to close the conversation and leave. Then I need to recover by myself.

    My son has a hard time knowing what to say but he really wants to interact with people. He likes tutoring because he knows what to do and say with people so it's his kind of socializing.
    If he went to an open ended thing like a barbeque where people just hang out and chit chat, he'd be an anxious mess.

    When he goes to the school to tutor, he brings magic tricks. It gives him something to use for socializing. It helps other shy kids have something to talk about, too.

    Last time he went to the school, he brought his fencing helmet. It brought a lot of interaction he could handle.

    I had a sparkly spider for a long time. Good stimmy thing.


    Posted by B B on 04/10/2009 @ 11:13AM PT

  2. Dora Raymaker

    I've had so much frustration and pain from communication problems that I ended up really making communication a focus of my Interest--hence yes, the awareness and deliberateness.  I'm old enough now so I've had a lot of decades of trial and error, lessons learned, and great advice from friends, family, and therapists.  I only wish I'd learned a lot of what I know now sooner.

    I do the same things your son does interaction-wise--I don't go to open ended things like a BBQ, doesn't work for me.  I socialize in topic-specific ways that are related to my Interests and/or where I understand the rules of engagement, for example research collaboration.  Meaningful relationships get born from that sort of interaction for me.

    Posted by Dora Raymaker on 04/10/2009 @ 12:01PM PT

  3. Reply to thread
  4. Norah vd Stel

    In situations like that, where I am a bit slow to process, but also often simply can't make out what is being said due to all the other sounds, AND am completely overloaded and usually at least some part into shutdown in situations like that (and saving up and reserving what spoons I can to listen and think about the actual important conferency stuff that's going on), what would have happened to me is scripts take over. Someone presses something into my hand, says something (I can still parse the pattern, the structure of the sounds and sentence, even if I can't hear the words for various reasons), and some script pops up that is supposed to be appropriate to the situation.

    It often works, but of course it can lead to some interesting situations too (and that I can often laugh about later, but not alwasy). In your example case, my face would have smiled (I think, I'm very bad at knowing if I really am smiling when I think I am), and said thank you, though I can't be sure I would have said it at the appropriate volume.
    All on automatic pilot. Later on I would have had time to figure out what happened. In your example case, my scripts would have done an adequate job.

    Unfortunately they have also landed me subscriptions to aggressive, borderline spam-like magazine subscriptions and worse. Perhaps it's just a case of me needing to refine and upgrade my programme that puts out stock phrases :P. I mean, there are probably computer programmes out there by now that can do a better job of it.

    I think the rules for social interaction are not the really set-like rules that I like, or maybe they are, but are just incredibly complex. There is a lot of improvising. More like an underlying structure/foundations that people build on and dress up on their own, and they know when you can put on what and where without the building collapsing, so to speak. And I don't know if I can ever understand it, but I might be able to mimic it or learn at least to a certain extent where not to put too much weight etc. without understanding, through different means, a more "if this, then response that" kind of system that has to grow very complex indeed to be of any use.

    In social interactions, I'm like Google translations: you can make out the basic intent, but honestly, it looks like complete crap.

    Posted by Norah vd Stel on 04/10/2009 @ 12:04PM PT

  5. Norah vd Stel

    Oh, yeah, and it's a lot easier when people don't expect you to be able to interact a certain way and judge you, intentionally / consciously or not,  when you can't. That ought to be always, but it turns out to be almost never.

    Posted by Norah vd Stel on 04/10/2009 @ 12:09PM PT

  6. Reply to thread
  7. Sister Wolf

    I love this post, Dora. It's a rare gift to be able to write well enough to let a reader experience what goes on in your head.

    Posted by Sister Wolf on 04/11/2009 @ 08:04PM PT

Add a Comment

For your comment to be published, you will need to confirm your email address after submitting your comment.

If you already have an account, click here to log in.

Comments on Change.org are meant for further exploration and evaluation of the ideas covered in the posts. To that end, we welcome constructive comments. However, we reserve the right to delete comments that are offensive, abusive, or off-topic; that contain ad hominem attacks; or that are designed to subvert or hijack comment threads rather than contribute to them. Repeat offenders may be permanently removed from the site at our discretion.

Author
Dora Raymaker

Dora is committed to improving quality of life for individuals on the autistic spectrum--including herself! She is Co-director of the Academic Autistic Spectrum Partnership in Research and Education and a member of the Autistic Self Advocacy Network's Board of Directors.

Most Popular Autism Posts
close

This user's Profile page is not public. They have restricted it to only their friends.

Already a Member?

Create an Account

You must create a Change.org account to complete this action.
If you already have an account click here.